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Advocacy can be as simple as helping to speak up for the rights of a friend or loved one in pain to testifying before Congress to ensure that voices of those most affected by pain are included in pain policies.

Ways that you can advocate for the rights of people with pain include:

  • Knowing the rights of people with pain and having the courage to speak up about those rights.

  • Becoming educated about issues surrounding appropriate treatment of pain.

  • Increasing visibility of issues related to pain in your community.

  • Building a network of pain advocates that will help you increase your voice and spread your message.

  • Reaching out to people who are influential in raising awareness and determining pain-related policy, such as journalists or elected officials, as well as those in the greater community who will benefit most by learning about their rights to pain care.

  • Serving as a voice for people in pain through your professional organizations and through research.

 

Self Advocacy

Self advocacy refers to an individual’s ability to effectively communicate, convey, negotiate or assert his or her own interests, desires, needs and rights. It involves making informed decisions and taking responsibility for those decisions. Whether you are a person with pain, a caregiver, or someone who advocates on the behalf of others, self advocacy is an essential skill to learn and embrace.

Self advocacy is important. It is about understanding your strengths and needs, identifying your personal goals, knowing your legal rights and responsibilities and then communicating these to your family, friends, and your health care team. This is the first step in your journey to ensure the appropriate diagnosis and treatment for your pain.

Through being your own advocate, or an advocate for someone you care about, you become empowered – with information, knowledge and self-respect. Health care professionals can also play a key role by supporting their patients’ efforts toward self advocacy.

Whether you are a person with pain, a caregiver or someone who advocates on the behalf of others, self advocacy is an essential skill to learn and embrace. YOU may be the only resource that assists your health care team in delivering you the quality care you want and deserve. You are your most important advocate!

Barriers to Pain Management

Unfortunately, many barriers prevent effective pain assessment and treatment. Health care professionals are concerned about their patients, patients are concerned about their health, and the health care system struggles with providing appropriate and effective health care at a cost that can be sustained. However, over time, each of these groups has contributed to building barriers to proper pain management and making them appear insurmountable. This is where advocacy can help make a difference.

As an advocate, YOU are a part of the solution in helping to overcome these barriers. By sharing your story and consistently communicating your key messages to audiences such as your community, the media, legislative bodies, and your peers, YOU are a part of the team that raises awareness of pain management issues and breaks down the barriers to effective pain care.

People who live with pain have a right to appropriate assessment and treatment of their pain.

  • While pain can affect anyone regardless of gender, race or economic status, some people have difficulty getting adequate pain care. Women, certain ethnic groups and the elderly are more likely to be denied appropriate pain treatment.

  • People who suffer from pain and their loved ones need to speak with their health care professional and take an active role in managing their pain.

  • Pain can and should be treated. We all have a right to proper medical care.

Resources 

State Legislative & Regulatory Resources

 

 

 

State Legislature Websites:  

http://www.statescape.com/resources/legislative/legislature-links/ 

 

Track State opioid legislation:  

http://www.ncsl.org/research/health/prescription-drug-statenet-database.aspx 

 

STATE REGULATORY/ RULEMAKING PROCESS:

 


Regulatory Process - StateScape
Regulations are rules passed by administrative agencies. While each agency may set particular guidelines for its own rulemaking process...


Know the Rules - ChangeLab Solutions
State rulemaking usually involves several phases, including providing notice that the agency is considering adopting or amending a rule; taking public comment; and approving and adopting the final rule. Advocates can request notice of proposed rules from the agencies that oversee their areas of interest.   (13 pages·1 MB)

 

 

 

 

 

FEDERAL LEGISLATIVE/REGULATORY  RESOURCES:

US Members of Congress by State (all inclusive with social media links):  https://www.contactingcongress.org

Congressional District Map USA:  

https://www.govtrack.us/congress/members/map 

 

Track Federal Opioid Legislation:  

 

 

 

 

REGULATORY RESOURCES:

 

 

 

Learn more about the rulemaking process and how you can effectively participate in it.

 

 

The Federal Rulemaking Process: An Overview - FAS.org
37 pages·531 KB

 

In administrative law, rule-making is the process that executive and independent agencies use to create, or promulgate, regulations. In general, legislatures first set broad policy mandates by passing statutes, then agencies create more detailed regulations through rulemaking.

 

Rulemaking / Writing Agency Regulations Overview :: Justia

Information on the steps in the rulemaking process by which federal and state agencies craft regulations to enforce laws produced by legislatures.

 

WHAT IS THE FEDERAL REGISTER?

 

The Federal Register (FR or  Fed. Reg.) is the official journal of the federal government of the United States that contains government agency rules, proposed rules, and public notices.[1] 

 

It is published every weekday, except on federal holidays. The final rules promulgated by a federal agency and published in the Federal Register are ultimately reorganized by topic or subject matter and codified in the Code of Federal Regulations (CFR), which is updated annually.

 

 

The Federal Register is compiled by the Office of the Federal Register (within the National Archives and Records Administration) and is printed by the Government Publishing Office. There are no copyright restrictions on the Federal Register; as a work of the U.S. government, it is in the public domain.[2]

 

The Federal Register provides a means for the government to announce to the public changes to government requirements, policies, and guidance.

 

 

  • Proposed new rules and regulations

  • Final rules

  • Changes to existing rules

  • Notices of meetings and adjudicatory proceedings

  • Presidential documents including Executive orders, proclamations and administrative orders.

 

 

Both proposed and final government rules are published in the Federal Register. A Notice of Proposed Rulemaking (or "NPRM") typically requests public comment on a proposed rule and provides notice of any public meetings where a proposed rule will be discussed. The public comments are considered by the issuing government agency, and the text of a final rule along with a discussion of the comments is published in the Federal Register. Any agency proposing a rule in the Federal Register must provide contact information for people and organizations interested in making comments to the agencies and the agencies are required to address these concerns when it publishes its final rule on the subject.

 

The notice and comment process, as outlined in the Administrative Procedure Act, gives the people a chance to participate in agency rulemaking. Publication of documents in the Federal Register also constitutes constructive notice, and its contents are judicially noticed.[3]

 

 

What is Regulations.gov?

 

Regulations.gov is your source for information on the development of Federal regulations and other related documents issued by the U.S. government. 

 

Through this site, you can find, read, and comment on regulatory issues that are important to you.

 

 

 

About Regulations.gov

Understand the vision and history of the eRulemaking initiative and the agencies that participate in the program

 

 

If you require assistance submitting a comment or submission, please contact the Regulations.gov Help Desk via phone or email.

 

 

Call Monday - Friday, 9 am - 5 pm ET
1-877-378-5457 (toll free)
703-454-9859

Send an email to the Help Desk: regulations@erulemakinghelpdesk.com

Medical/Prescribing Regulations:

National organizations may provide information on the regulation of the practice of medicine in other states.

 

 

 

State Opioid Dashboards HERE 

 

 

 

Opioid Resources HERE

 

 

 

 

PATIENT RESOURCES: 

 

Find a PAIN SPECIALIST: 

 

 

 

 

FIND UPCOMING EVENTS IN YOUR STATE HERE: 

 

https://doctorsofcourage.org/

o inform the public of the  action of the US Justice Department  to persecute medical professionals in order to confiscate their hard-earned assets.  No other profession has been attacked in this manner.

 
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