Agencies and Organizations





Heart Disease/Stroke


ALS/Lou Gehrig’s Disease

Multiple Sclerosis

Traumatic Brain Injury

Post-Traumatic Stress Disorder

Parkinson’s disease

Rare Diseases

Search for Information on other conditions:

National Association for Home Care and Hospice

This organization for home healthcare agency providers allows family caregivers to use the Internet to access a list of member agencies across the country.

Visiting Nurse Associations of America

VNAA promotes community based home healthcare. Family caregivers can contact them to find their local VNA.


Consumer Consortium on Assisted Living (CCAL)

CCAL is a national consumer-focused organization that is dedicated to representing the needs of residents in assisted living facilities and educating consumers, professionals, and the general public about assisted living issues. Family caregivers can request the publication "Choosing an Assisted Living Facility: Strategies for Making the Right Decision," which provides helpful information and a concise checklist for those contemplating this next step.

National Citizens' Coalition for Nursing Home Reform

This organization serves as an information clearinghouse and offers referrals nationwide for help with concerns about long-term care facilities.

Senior Advisor is one of the nation's largest senior living review sites. Browse photos, ratings, and opinions of assisted living, dementia care, independent living, senior apartments, and more - all by people just like you. You'll also find top rated senior in-home care providers, elder care attorneys, and a community full of advice for virtually every facet of your retirement planning.

Family Caregiver Alliance (FCA)

FCA is the lead agency in California's system of Caregiver Resource Centers. FCA provides support and help to family caregivers and champions their cause through education, services, research and advocacy. Services are specific to California, although information can be accessed nationally.

Family Voices, Inc.

Family Voices offers information on healthcare policies relevant to special needs children in every state.

Friends' Health Connection

Friends' Health Connection links persons with illness or disability and their family caregivers with others experiencing the same challenges.

National Alliance for Caregiving

Although not an organization that helps family caregivers directly, The National Alliance for Caregiving's Website helps family caregivers learn about information, videos, pamphlets, etc. that have been reviewed and approved as providing solid information.

National Family Caregivers Association

On January 1, 2013, the National Family Caregivers Association became Caregiver Action Network.

Rosalynn Carter Institute for Human Development (RCI)

RCI provides educational programs for caregivers, conducts research, and disseminates information about caregiving.

U.S. Department of Health and Human Services

A federal Web site designed to help people stay healthy. features links to more than 6,000 government and nonprofit health information resources on hundreds of health topics including personalized health tools such as health calculators, activity and menu planners, recipes, and online checkups. In addition, the site offers tips for caregivers and health news. Information is provided in English and Spanish.

Well Spouse Association

Well Spouse is a national membership organization that gives support to husbands, wives, and partners of the chronically ill and/or disabled. Well Spouse has a network of support groups and also a newsletter for spouses.

Patient Advocate Foundation

Patient Advocate Foundation serves as a liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relating to a patient's condition.

Homecare Agencies National Association for Home Care and Hospice

This organization for home healthcare agency providers allows family caregivers to use the Internet to access a list of member agencies across the country.