Agencies and Organizations

Alzheimer’s/Dementia

Arthritis

Cancer

Diabetes

Heart Disease/Stroke

Kidney

ALS/Lou Gehrig’s Disease

Multiple Sclerosis

Traumatic Brain Injury

Post-Traumatic Stress Disorder

Parkinson’s disease

Rare Diseases

Search for Information on other conditions:

National Association for Home Care and Hospice

This organization for home healthcare agency providers allows family caregivers to use the Internet to access a list of member agencies across the country.

Visiting Nurse Associations of America

VNAA promotes community based home healthcare. Family caregivers can contact them to find their local VNA.

 

Consumer Consortium on Assisted Living (CCAL)

CCAL is a national consumer-focused organization that is dedicated to representing the needs of residents in assisted living facilities and educating consumers, professionals, and the general public about assisted living issues. Family caregivers can request the publication "Choosing an Assisted Living Facility: Strategies for Making the Right Decision," which provides helpful information and a concise checklist for those contemplating this next step.

National Citizens' Coalition for Nursing Home Reform

This organization serves as an information clearinghouse and offers referrals nationwide for help with concerns about long-term care facilities.

Senior Advisor

SeniorAdvisor.com is one of the nation's largest senior living review sites. Browse photos, ratings, and opinions of assisted living, dementia care, independent living, senior apartments, and more - all by people just like you. You'll also find top rated senior in-home care providers, elder care attorneys, and a community full of advice for virtually every facet of your retirement planning.

Family Caregiver Alliance (FCA)

FCA is the lead agency in California's system of Caregiver Resource Centers. FCA provides support and help to family caregivers and champions their cause through education, services, research and advocacy. Services are specific to California, although information can be accessed nationally.

Family Voices, Inc.

Family Voices offers information on healthcare policies relevant to special needs children in every state.

Friends' Health Connection

Friends' Health Connection links persons with illness or disability and their family caregivers with others experiencing the same challenges.

National Alliance for Caregiving

Although not an organization that helps family caregivers directly, The National Alliance for Caregiving's Website helps family caregivers learn about information, videos, pamphlets, etc. that have been reviewed and approved as providing solid information.

National Family Caregivers Association

On January 1, 2013, the National Family Caregivers Association became Caregiver Action Network.

Rosalynn Carter Institute for Human Development (RCI)

RCI provides educational programs for caregivers, conducts research, and disseminates information about caregiving.

U.S. Department of Health and Human Services

A federal Web site designed to help people stay healthy. Healthfinder.gov features links to more than 6,000 government and nonprofit health information resources on hundreds of health topics including personalized health tools such as health calculators, activity and menu planners, recipes, and online checkups. In addition, the site offers tips for caregivers and health news. Information is provided in English and Spanish.

Well Spouse Association

Well Spouse is a national membership organization that gives support to husbands, wives, and partners of the chronically ill and/or disabled. Well Spouse has a network of support groups and also a newsletter for spouses.

Patient Advocate Foundation

Patient Advocate Foundation serves as a liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relating to a patient's condition.

Homecare Agencies National Association for Home Care and Hospice

This organization for home healthcare agency providers allows family caregivers to use the Internet to access a list of member agencies across the country.

Visiting Nurse Associations of America

VNAA promotes community based home healthcare. Family caregivers can contact them to find their local VNA.

Assisted Living, Nursing Home, and Residential Care Consumer Consortium on Assisted Living (CCAL)

CCAL is a national consumer-focused organization that is dedicated to representing the needs of residents in assisted living facilities and educating consumers, professionals, and the general public about assisted living issues. Family caregivers can request the publication "Choosing an Assisted Living Facility: Strategies for Making the Right Decision," which provides helpful information and a concise checklist for those contemplating this next step.

National Citizens' Coalition for Nursing Home Reform

This organization serves as an information clearinghouse and offers referrals nationwide for help with concerns about long-term care facilities.

Medical Transport and Hospitality Housing National Association of Hospital Hospitality Houses (NAHHH)

NAHHH represents organizations that provide lodging (and service) for families receiving medical care away from home; furnishes information about hospitality homes in the caller's area; offers a newsletter; and publishes an annual directory of facilities offering lodging.

National Patient Travel Center

Family caregivers can receive help in locating air transportation for needy patients who need distant specialized medical evaluation, diagnosis, or treatment. The National Patient Travel Helpline is available 24/7 and provides referrals to all major medical transport providers in the network.

Benefits Check-Up and Benefits Check-Up RX Websites

A service of the National Council on the Aging, Benefits Check-Up and Benefits Check-UP RX help people over the age of 55 find federal, state, and local public and private programs that may pay for some of their medical care and/or prescription costs

Medicare Website

This is the official Website for the Centers for Medicare and Medicaid Services (CMS), the agency responsible for Medicare Rx. The toll-free number is 800/MEDICARE.

Medicare Rights Center

This is an independent source of health care information and assistance for older and disabled Americans, their caregivers, and the professionals who serve them. Medicare Interactive (MI) is the one-stop source for information about health care rights, options, and benefits, and it is designed to help people find answers to all their Medicare questions. The website also has a list of phone numbers for each state's "State Health Insurance Assistance Program."

American Red Cross

American Red Cross has developed training programs for family caregivers. You will need to check with your local chapter to find out if there are classes in your area.

 

AgingCare.com

Allsup Medicare Advisor®

American Cleaning Institute

Caregiver.Com

Caregivinghelp.org

CarePages

Centers for Medicare & Medicaid Services (CMS)

Disability.gov

Home Instead - Caregiverstress

ITN Men’s Caregiver Support Group program

Lotsa Helping Hands

New Health Partnerships

Next Step in Care

ShareTheCaregiving – aka Share The Care

Video Caregiving

Department of Veteran's Affairs

Disabled American Veterans

The National Resource Directory

Addiction Resource

Facing Disability

National Volunteer Caregiving Network

PREPARE Advance Directive

Antidote

How Caregivers Can Take Care of Themselves


Question for caregivers to help themselves


How to Recognize, Avoid, and Prevent Caregiver Burnout


A Not-To-Do List For Caregivers of the Chronically Ill


How to Help Your Caregiver



Into the Limelight: Perspectives on Caregiving:


The Aging Caregive

Caregiver groups


Caregiver Action Network


Family Caregiver Alliance


National Alliance for Caregiving


Partners in Healing


Today’s Caregiver


RobCares – caring for caregivers 

 
We can't preview this page because it's in an IFRAME